Lauren’s story: Living with Pulmonary Arterial Hypertension

November 24, 2025

"Living in a rural area of Queensland has its own set of challenges, particularly the long journeys to see my cardiologist and lung specialist every six months."

Lauren, QLD

I was diagnosed with PAH at the age of 14, nearly 15 years ago. I can vividly remember the challenges I faced shortly after I began my initial treatment. I always felt like I was missing out on what a typical teenage life should be.

In my late teens, I faced a significant turning point when I was hospitalised and found out I needed
additional medication and eventually a lung and/or heart transplant. It was a lot to take in, and the uncertainty really weighed on me. I started to wonder if I could still achieve the life I had always dreamed of.

After finishing high school, I trained in aged care because I’m passionate about helping others. I was fortunate to have the opportunity to volunteer part-time, and it was a truly rewarding experience. Even though my potential employer appreciated my volunteer work, I had a hard time finding paid employment in the field because of my condition,
which was really disappointing.

With the challenges my health brings, I’ve learned to prioritise my well-being and understand that my health needs to come first. I still long for the independence that comes with having a job and remain hopeful that one day I will achieve this goal.

Living in a rural area of Queensland has its own set of challenges, particularly the long journeys to see my cardiologist and lung specialist every six months. The five-hour trips can be tough, especially given the fatigue and occasional vertigo that accompany my condition. I’m grateful for my mother and father, who support me by taking time off work to accompany me on these trips, even though it adds financial strain.

This is my reality, but I strive to live my life to the fullest. I am organised and manage my time carefully to make the most of each day, always mindful of the limitations imposed by my condition.

_{AU-NON-00893v2. Updated November 2025}