Melinda’s Story: Living with Pulmonary Arterial Hypertension

November 10, 2025

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"Each day is unique, and while the unpredictability can be dauting, I strive to make the most of every moment."

Melinda, NSW

At 35 years old, I was a busy mother of two young children when I noticed that I was feeling breathless and struggling to move around my home. Initially, my GP thought these symptoms were part of my recovery from a recent hospital stay due to multiple blood clots. After seeking a second opinion and undergoing tests, my doctors diagnosed me with Pulmonary Arterial Hypertension (PAH) within a few months.

Living on a dairy farm in rural New South Wales, three hours from Sydney, presents unique difficulties – especially when it comes to managing my health. Before my PAH stabilised, I needed to travel every three months to see my specialist. This required my husband to take time off work and led to significant travel expenses.

My career and hobbies have been challenged by the effects of PAH. Receiving a PAH diagnosis meant closing my photogaphy business – a passion project I have always deeply cherished. It also meant that I have been unable to fully engage in our farm work the way I used to, which has been difficult, as sometimes I feel like a burden to the family.

This experience has also helped me recognise the importance of seeking support, even when it feels challenging. While I have lost some friendships along the way, I have discovered who my true friends are— those who stand by me through thick and thin.

Living with PAH has taught me that each day is unique. While the unpredictability can be daunting, I strive to make the most of every moment. I focus on the positives and cherish the time I have with my children and husband. I am grateful for the support of my family and the lessons I’ve learned through this journey. Each day offers an opportunity to embrace life, and I am thankful to still be here.

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