Paul’s Story: Living with Pulmonary Arterial Hypertension

November 20, 2025

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“I always saw myself as the father who provides for and protects the family – which unfortunately has not been the case, ever since my diagnosis."

Paul, QLD

I will always remember the day I received my diagnosis at the age of 31. It was a significant moment, especially as my wife was pregnant with our second daughter.

At the time, I was working as a firefighter when a routine blood test, led to further investigations. The results indicated an abnormal antibody, and after an echocardiogram and further tests, a pulmonary specialist diagnosed me with PAH. It was a challenging moment, that marked the beginning of a new chapter in my life.

Throughout my life, I had always prioritised fitness, having played professional rugby league in my younger years. Until my diagnosis, I was living my dream—working as an electrician and serving as a part- time firefighter. However, I had started to notice that I was becoming increasingly breathless over the years.

Living with PAH has brought its challenges, including financial hardships. I made the difficult decision to retire from both of my jobs, and now work as a part-time mentor at a local school three days a week. This role allows me to stay engaged with my community and continue to make a difference in the lives of young people.

I travel four times a year from Ingham, a regional town in Queensland, to Brisbane to see my specialist. These trips can be costly, so I choose to make them alone. I recognise the sacrifices my wife has made to care for our family, and I am grateful for her continuous support.

I always saw myself as the father who provides for and protects the family – which unfortunately has not been the case, ever since my diagnosis. My love for my family remains strong, and I have set a personal goal to see my daughters graduate from school and support them as they pursue their own dreams.

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